It is with a heavy heart that I share some incredibly sad news with the Histiocytosis community. I was informed that Dr. Lisa Filipovich passed away on May 17, 2020. She was in her home surrounded by her family and passed peacefully. 💙
When Liam became extremely ill and we finally had a diagnosis, we reached out to Dr. Filipovich for guidance since she was one of the world-renowned specialists in the field of HLH. She returned my email immediately and I was on the phone with her the next day, preparing for Liam to be transferred from Colorado to Cincinnati Children’s Hospital under her care. She responded to every email I sent and did her best to try and save Liam’s life. She held my hand as Liam was coding and the ICU doctors were trying to save his life. She made sure she was there during this time and she cried with me when he passed away. 💙
She was an extraordinary woman. Two weeks after Liam passed away, we hiked Yosemite with her in our presence to raise money for research. She has supported Liam’s Lighthouse Foundation from day 1 and gladly accepted when asked to be on our medical advisory board. She attended multiple LLF events including LLF sponsored grand rounds at The Children’s Hospital in Aurora, CO and our annual awareness campaign in New York City. She had such a brilliant mind, caring heart. She did so much to help others and went above and beyond for her patients and their families. She will be greatly missed by so many. 💙
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