 It is with a heavy heart that I share some incredibly sad news with the Histiocytosis community. I was informed that Dr. Lisa Filipovich passed away on May 17, 2020. She was in her home surrounded by her family and passed peacefully. 💙 When Liam became extremely ill and we finally had a diagnosis, we reached out to Dr. Filipovich for guidance since she was one of the world-renowned specialists in the field of HLH. She returned my email immediately and I was on the phone with her the next day, preparing for Liam to be transferred from Colorado to Cincinnati Children’s Hospital under her care. She responded to every email I sent and did her best to try and save Liam’s life. She held my hand as Liam was coding and the ICU doctors were trying to save his life. She made sure she was there during this time and she cried with me when he passed away. 💙 She was an extraordinary woman. Two weeks after Liam passed away, we hiked Yosemite with her in our presence to raise money for research. She has supported Liam’s Lighthouse Foundation from day 1 and gladly accepted when asked to be on our medical advisory board. She attended multiple LLF events including LLF sponsored grand rounds at The Children’s Hospital in Aurora, CO and our annual awareness campaign in New York City. She had such a brilliant mind, caring heart. She did so much to help others and went above and beyond for her patients and their families. She will be greatly missed by so many. 💙  Registered participants of the Virtual: 5K to Fight Histio 2020 -now being hosted on Sept. 27th- are invited to participate in the liam's lighthouse foundation Virtual Meet & Greet 2020 on Sunday, July 19th!
As part of our annual 5K to Fight Histio participants have an exclusive opportunity to attend a special gathering that gives them the platform to connect with others affected by Histiocytosis. The Meet and Greet allows registrants and their guests to share experiences, offer support and encourage each other along their journey. This year as the 5K goes virtual, Liam's Lighthouse Foundation warmly invites participants to continue the tradition online with a virtual Meet & Greet! This unique event will feature a special Q&A session with Dr. Michael B. Jordan of Cincinnati Children's Hospital HLH I Center of Excellence and Dr. Ken McClain of Texas Children's Hospital. Don't miss out on this powerful and uplifting experience. Visit www.5KtoFightHistio.org and register for the 5K today — then join us on 7/19/2020 at 1:00pm EST. Learn how you can help make a difference and see how the 5K to Fight Histio continues to advance research and awareness. Join us LIVE on Facebook September 27thDue to the ongoing Coronavirus pandemic, the 5K to Fight Histio 2020 will now be a VIRTUAL ONLY event. To provide a more interactive and exciting virtual experience for our attendees, the Virtual 5K to Fight Histio will now be September 27, 2020! We can't wait to see everyones photos! Stay tuned for more information!  |
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June 2020
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