LIAM'S LIGHTHOUSE FOUNDATION
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Let's Fight Histio Together

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Welcome

Liam's Lighthouse Foundation was founded in 2009 after Michelle and Chris Schulze were inspired by their son Liam to make a difference in the world of Histiocytosis and continue the fight against this horrific disease that he no longer could.

HLH (Hemophagocytic Lymphohistiocytosis) is is not well known among many doctors, so it continues to go undiagnosed or misdiagnosed, and many children have died before a diagnosis could be made due to its rapid, fatal nature.

Parents are their children's best advocates and are part of the team to provide our children the best possible chance for early detection and survival. Liam's Light House was founded to help light the way for awareness, education, funding, and a cure. 

In Memory of Liam

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Learn more about Liam Christopher Schulze and how his mother is going great lengths to help others save their children from an untimely departure. 

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Our Mission

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Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim to raise much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure.  LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.

Get Involved

We are stronger together and we need your support to move forward. Please join us in learning more about Histio, spreading awareness, participating in annual fundraising events, and subscribing to newsletters. Every little bit helps pave the way for additional research and ultimately a cure. 
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Events & Campaigns

Annual Golf Tournament fundraiser, happening at  Sand Spring Country Club in Drums, PA on Saturday, September 7, 2024
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Learn More About Histio

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Be The Match

Every act of giving is a gift of hope. 
​Find out how you can be the match. 
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Stay Connected

Sign up for our newsletters to stay connected and up to date on the Histio community. 
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Donate

Your generous donation is always welcome. All donations are tax deductible 
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​light - house, (n): a tower with a powerful light positioned at some important point to serve as a guide.

Find Us At

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Liam's Lighthouse Foundation  -  5818 Charlois Court | Colorado Springs, CO 80922-2226 USA
 EIN #  27-1309152
The content on this site is not intended to be a substitute for professional medical advice, diagnosis or treatment.
  • Home
  • Get Involved
    • Be The Match
    • Events & Campaigns >
      • Liam's Lighthouse Foundation Annual Golf Tournament
      • 5K to Fight Histio
      • Light The Way Program
    • Subscribe
    • Contact Us
  • About Us
    • Our Mission
    • Do you know Histio? >
      • What is HLH?
      • INTO-HLH
      • Other Histiocytic Disorders
      • Important Links
    • Liam's Story
    • Board Members/Volunteers
  • Donate
    • General Donations