liam's lighthouse foundation is a non-profit organization with a tax exempt status under section 501(c)(3) of the Internal Revenue Code and currently registered in the states of Colorado, New York, and Pennsylvania.
My name is Michelle Schulze and I am the proud mother of baby angel Liam Schulze. I am originally from Northeast Pennsylvania and graduated with a Master's Degree in physical therapy from Misericordia University. I started liam's lighthouse foundation because my son has inspired me to make a difference in the world of Histiocytosis and continue the fight he no longer could against this horrific disease. The harsh reality is that most physicians are not familiar with HLH (Hemophagocytic Lymphohistiocytosis), many of which have never even heard of the disease. HLH is going undiagnosed or misdiagnosed, and many children have died before a diagnosis could be made due to its rapid, fatal nature. Educating the community and our primary care medical professionals is mandatory so this disease can be identified earlier and a cure can be found. Parents are their children's best advocates and are part of the team to provide our children the best possible chance for early detection and survival.
All work of the organization to date has been performed 100% by valued volunteers or paid for services. There are currently no paid employees of the organization.
