The HLH Center of Excellence at Cincinnati Children’s Hospital and Texas Children’s Hospital are the premier institutions world renown for the treatment of HLH and LCH (Langerhan’s Cell Histiocytosis). Because too many physicians are not familiar with these diseases, the proper care is not always carried out which often results in the unfortunate loss of a life. The more aware we can make our community and physicians, the more these diseases can be identified, and the more the appropriate treatments can be implemented. However, not all families can get their loved ones to these two institutions due to insurance refusals and financial burdens. Liam’s Lighthouse Foundation is excited to announce the launch of our Light The Way program! We want to help defray treatment-related expenses for Histio families. This may include but not limited to ground transportation, air travel, and lodging related expenses. Our goal for 2019 is to raise $10,000 for our Light The Way program! Without the right doctors and the right treatment, most diagnosed with these disease will not survive due to improper management.
light - house, (n): a tower with a powerful light positioned at some important point to serve as a guide.