Liam's Lighthouse Foundation
  • Home
  • About Us
    • About Liam's Lighthouse
    • Our Mission
    • Liam Schulze >
      • Liam's Legacy
      • Liam's Story
    • Board Members/Volunteers >
      • Board Members
      • Volunteers
    • Medical & Research Advisors
  • Do you know Histio?
    • What is HLH? >
      • Resources >
        • Light The Way Program
        • Subscribe to Emails
        • Important Links
    • Other Histiocytic Disorders
    • Clinical Trials
    • Research >
      • LLF Grant Funded Projects Announcements & Updates
  • News
    • News
    • Guestbook Pages
  • Get Involved
    • Get Connected
    • Be The Match
    • Subscribe
    • Events & Campaigns >
      • 5K to Fight Histio
      • Liam Schulze Annual Memorial Golf Tournament
      • Histiocytosis Awareness Month
      • Dynamite the Histio Warrior Dragon
      • Trim The House for Histio
    • eStore
    • Contact Us >
      • Contact Us
      • Press Releases
  • Donate

 news 

Media Advisory - 5K to Fight Histio Puts Spotlight on Rare Diseases

7/12/2019

Comments

 
Picture
FOR CALENDAR & EVENTS LISTINGS           
Media Contact                    
Mary Sullivan | Mary@LiamsLighthouseFoundation.org | 401.339.2658 
 
***MEDIA ADVISORY*** 
 
5K to Fight Histio Puts Spotlight on Rare Diseases  
7th annual event hosted by Liam’s Lighthouse Foundation to raise awareness and money for histiocytic research.  
 
WHAT:        5K to Fight Histio 
 WHO:          Liam’s Lighthouse Foundation 
 WHERE:     Hudson River Park – Pier 84 
         555 12th Ave 
         New York, NY 10036 
 
WHEN:       Sunday, July 21, 2019 from 8:00 a.m. - 12:00 p.m. ET  
 ATTEND:    Register        
 
DETAILS:  
 
On July 21, 2019, the annual 5K to Fight Histio will bring together families and leaders in the histiocytosis community to raise awareness about and money to support Hemophagocytic Lymphohistiocytosis (HLH) and histiocytic disorders. Now in its 7th year hosted by Liam’s Lighthouse Foundation, the 5K run/walk will take place at New York City’s Hudson River Park with proceeds funding cutting-edge medical research.   
 
“Seven years ago, the 5K started out as a group of friends trying to support a grieving mother who lost her 20-month-old to HLH. In that short time, we’ve not only raised thousands of dollars to support critical research, but more importantly we’ve created a supportive community for those impacted by HLH and other histio disorders,” said Michelle Schulze, president and founder of Liam’s Lighthouse Foundation. “We’re excited to host hundreds of histio families from all over the world – including South Africa – at this year’s event, where we’ll come together to celebrate life and the progress we’ve made in taking on these rare disorders.” 
​

 Histiocytic disorders are a group of life-threatening diseases that often go misdiagnosed or underdiagnosed as initial symptoms may mimic other problems such as common infections. Symptoms may include persistent fevers, rashes, enlarged spleen, liver and/or lymph nodes, etc. A swift diagnosis is key to improving outcomes, as are expanding treatment options for these patients. 
 To learn more about HLH and other histiocytic disorders as well as Liam’s Lighthouse Foundation, please visit www.LiamsLighthouseFoundation.org.  
### 
​

Comments

    NEWS

    Find out what's new at LLF by following our News Blog!

    Register to receive newsletters, grants funded, events information and more right to your email inbox!

    Register Now

    RSS Feed

    Archives

    November 2019
    September 2019
    August 2019
    July 2019
    February 2019
    November 2018
    September 2018
    October 2017
    July 2015
    November 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    January 2014
    July 2013
    May 2013
    September 2012
    July 2012
    August 2011
    April 2011
    September 2010
    August 2010
    June 2010
    May 2010
    April 2010
    March 2010
    January 2010

​light - house, (n):
a tower with a powerful light positioned at
​ some important point to serve as a guide.

Board Members
Volunteers
Events

Find Us At

Subscribe to Emails
Picture

Liam's Lighthouse Foundation  -  5818 Charlois Court | Colorado Springs, CO 80922-2226 USA
 EIN #  27-1309152
The content on this site is not intended to be a substitute for professional medical advice, diagnosis or treatment.
  • Home
  • About Us
    • About Liam's Lighthouse
    • Our Mission
    • Liam Schulze >
      • Liam's Legacy
      • Liam's Story
    • Board Members/Volunteers >
      • Board Members
      • Volunteers
    • Medical & Research Advisors
  • Do you know Histio?
    • What is HLH? >
      • Resources >
        • Light The Way Program
        • Subscribe to Emails
        • Important Links
    • Other Histiocytic Disorders
    • Clinical Trials
    • Research >
      • LLF Grant Funded Projects Announcements & Updates
  • News
    • News
    • Guestbook Pages
  • Get Involved
    • Get Connected
    • Be The Match
    • Subscribe
    • Events & Campaigns >
      • 5K to Fight Histio
      • Liam Schulze Annual Memorial Golf Tournament
      • Histiocytosis Awareness Month
      • Dynamite the Histio Warrior Dragon
      • Trim The House for Histio
    • eStore
    • Contact Us >
      • Contact Us
      • Press Releases
  • Donate