Board Members

Michelle Schulze - Founder, President
Colorado Springs, Colorado, USA
[email protected]
Michelle is originally from Pittston Township, PA and graduated from Misericordia University in 2001 with a Bachelor of Science, Masters in Physical Therapy. She is currently employed as a physical therapist in Colorado Springs, CO. Michelle and her husband, Chris, were blessed with a beautiful baby boy on January 2, 2008. After 10 months of misdiagnosis, their son, Liam, was finally diagnosed with HLH on March 26, 2009. (see Liam's story). After Liam's passing in September 2009, Michelle continued to come across other parents with children affected by HLH who also were initially misdiagnosed of this deadly disease, some resulting in their child's death as well. Michelle also continued to research HLH and soon found that it has been diagnosed since the 1950's. She felt it unacceptable physicians are still misdiagnosing the clinical signs and symptoms of HLH even though there has been more and more focus on it since then as well as the formation of The Histiocytie Society in 1985.
Michelle founded LLF in order to continue the fight her son no longer could against HLH. Statistics are showing the incidence of HLH has increased over the past few years due to progress in research and better detection. Michelle is dedicated to raising awareness of Histiocytic disorders, supporting families affected by these diseases, and funding much needed research for safer more effective treatments and ultimately a cure. She will do this in her son's name and honor of his fight against HLH.
"There are days when my mind wanders back to those sleepless days of pure FEAR living in the hospital and they will be engraved in my mind forever. Life continues to challenge me each and every day, but starting his foundation is one of the best things I have ever done. Liam has taught me so much. He has taught me to fight for what I believe in, not to give up even when things seem impossible, and what love truly feels like. The love for a child cannot be compared to any other. He has taught me that "life is not measured by the number of breaths we take, but by the moments that take our breath away" (Maya Angelou). I am just a mom who lost her child to a horrible disease and is trying to make a difference in the world of Histiocytosis. There is power in numbers and in numbers we can make a difference."
Colorado Springs, Colorado, USA
[email protected]
Michelle is originally from Pittston Township, PA and graduated from Misericordia University in 2001 with a Bachelor of Science, Masters in Physical Therapy. She is currently employed as a physical therapist in Colorado Springs, CO. Michelle and her husband, Chris, were blessed with a beautiful baby boy on January 2, 2008. After 10 months of misdiagnosis, their son, Liam, was finally diagnosed with HLH on March 26, 2009. (see Liam's story). After Liam's passing in September 2009, Michelle continued to come across other parents with children affected by HLH who also were initially misdiagnosed of this deadly disease, some resulting in their child's death as well. Michelle also continued to research HLH and soon found that it has been diagnosed since the 1950's. She felt it unacceptable physicians are still misdiagnosing the clinical signs and symptoms of HLH even though there has been more and more focus on it since then as well as the formation of The Histiocytie Society in 1985.
Michelle founded LLF in order to continue the fight her son no longer could against HLH. Statistics are showing the incidence of HLH has increased over the past few years due to progress in research and better detection. Michelle is dedicated to raising awareness of Histiocytic disorders, supporting families affected by these diseases, and funding much needed research for safer more effective treatments and ultimately a cure. She will do this in her son's name and honor of his fight against HLH.
"There are days when my mind wanders back to those sleepless days of pure FEAR living in the hospital and they will be engraved in my mind forever. Life continues to challenge me each and every day, but starting his foundation is one of the best things I have ever done. Liam has taught me so much. He has taught me to fight for what I believe in, not to give up even when things seem impossible, and what love truly feels like. The love for a child cannot be compared to any other. He has taught me that "life is not measured by the number of breaths we take, but by the moments that take our breath away" (Maya Angelou). I am just a mom who lost her child to a horrible disease and is trying to make a difference in the world of Histiocytosis. There is power in numbers and in numbers we can make a difference."
Our Volunteers
Volunteers are the backbone of any non-profit organization, dedicating their time, energy, and skills to support a cause they believe in.
We are immensely grateful for everything they do to help move us forward. Without them, we could not achieve the mission of Liam's Lighthouse Foundation. We'd like to extend a sincere thank you to all of our volunteers, for your generosity and commitment. You are truly appreciated.
We are immensely grateful for everything they do to help move us forward. Without them, we could not achieve the mission of Liam's Lighthouse Foundation. We'd like to extend a sincere thank you to all of our volunteers, for your generosity and commitment. You are truly appreciated.
Audra Daniloff
Wisconsin
Wisconsin
Marc Daniloff
Wisconsin
Wisconsin
Amanda Majusiak
Mullica Hill, New Jersey
Mullica Hill, New Jersey
Jennifer Mitchell
Leander, Texas
Leander, Texas