Wishing you all a very Happy Thanksgiving Day!! 🦃💙 May your day be filled with love, fun, and lots of good food! 😍 We love you all!!
💙 Team Dynamite
Special note from Jen:
Thanksgiving Day is a day dedicated for giving thanks. I want to take this opportunity to express my thankfulness and gratitude. I am eternally thankful and grateful for Liam's Lighthouse Foundation (LLF) and everyone who has helped get Dynamites to our Histio Warriors and Angel Families. Michelle Schulze, Founder of LLF; Amanda & Eric Majusiak, along with the entire LLF team, and every single one of you have a very special place in my heart. Dynamite would not be where he is today without all of you!! Thank you all so very much!!💙🥰
A few months ago, I was invited to attend Sobi’s Annual Employee conference in Nashville, TN, as a guest speaker to share Liam’s story. There was no doubt in my mind I needed to do this and was so honored to be asked to do so, but to say I was nervous was an understatement. I was terrified. Not only do I not like speaking in front of large groups of people, I didn't know how I was going to be able to speak out loud about Liam's journey to such a large group. Would I be physically and emotionally able to do it?! I got through it (I believe with the help of a little angel) and I am so glad I did it. The feeling I felt afterwards was one of great accomplishment. If I were to die tomorrow, I feel content in knowing that I made a difference by sharing Liam’s story and honoring his fight. It's a different kind of accomplishment than raising thousands of dollars with the help of so many and supporting our mission. It's a far deeper accomplishment. I cannot give him a hug or tell him face to face how much I love him and how proud I am of him. But doing things like this is how I continue to show my LOVE for him. Thank you, Sobi, for this amazing opportunity to educate others and to honor our son. And the biggest thank you of all to my mom for supporting me through it all!
We are excited to attend the 35th Annual Histiocyte Society Meeting in Memphis, TN USA.
World-renowned experts dedicated to improving the lives of patients with histiocytic disorders meet to discuss the latest clinical advances in Histiocytosis Research.
What is the Histiocyte Society?
The Histiocyte Society, a nonprofit organization, is a group of more than 200 physicians and scientists from around the world committed to improving the lives of patients with histiocytic disorders by conducting clinical and laboratory research into the causes and treatment of this disease.
What is the mission of the Histiocyte Society?
To advance knowledge about and improve outcomes for patients with histiocytic disorders through clinical and basic research and education.
What is the purpose of the Annual Meeting?
The Annual Meeting of the Histiocyte Society allows physicians to meet with steering committees, present their latest findings and establish plans for implementing new diagnostic criteria or treatment guidelines.
Liam’s Lighthouse Foundation, along with other Histio organizations are in attendance to understand the future publication trajectory, and plan for the next steps in funding research. We aim to bridge the gaps between patient organizations and physicians.
How you can help:
Sign up for emails to receive late breaking research information.
Support awareness and fundraising initiatives.
Participate in clinical trials.
Participate in patient feedback studies.
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