Golf Tournament Celebrates Child’s Life, Puts Spotlight on Rare Disease

***MEDIA ADVISORY*** 
Golf Tournament Celebrates Child’s Life, Puts Spotlight on Rare Disease  
11th annual event hosted by Liam’s Lighthouse Foundation to raise awareness and money for Hemophagocytic Lymphohistiocytosis (HLH) research.  
 WHAT:        Liam Schulze 11th Annual Memorial Golf Tournament 
 WHO:          Liam’s Lighthouse Foundation 
 WHERE:     StoneHedge Golf Course 
                     55 Stonehedge Drive 
                     Tunkhannock, PA 18657 
WHEN:       Sunday, September 22, 2019 from 12:30 p.m. - 5:00 p.m. ET  
COST:        $100 per golfer; $100 per team of 4 (fee includes green fees, cart, dinner, t-shirt,                          goodie bag, prizes); $30 for dinner only  
ATTEND:    Register        
 DETAILS:  On September 22, 2019, the Liam Schulze 11th Annual Memorial Golf Tournament will be held at StoneHedge Golf Course to raise awareness about and money to support Hemophagocytic Lymphohistiocytosis (HLH) research. All proceeds from the tournament, hosted by Liam’s Lighthouse Foundation, helps to further cutting-edge medical research and find a cure for HLH.  
 HLH is a life-threatening immunodeficiency that often go misdiagnosed or underdiagnosed as initial symptoms may mimic other problems such as common infections. Symptoms may include persistent fevers, rashes, enlarged spleen, liver and/or lymph nodes, etc. 
 “Ten years ago we lost Liam to this horrible disease. HLH took my baby boy from the most beautiful blonde haired, blue-eyed, happy and active child, to a one that was unrecognizable and could not move on his own due to treatment. This horrible disease took everything from him and us,” said Michelle Schulze, president and founder of Liam’s Lighthouse Foundation. “We continue to celebrate my precious son Liam via the work of the foundation and at events like this year’s memorial golf tournament. The support from the community for the golf tournament and the foundation in general has been overwhelming and we are so grateful for everyone’s help in continuing Liam’s fight to make a difference.” 

Advanced registration for the Liam Schulze 11th Annual Memorial Golf Tournament is encouraged due to ticket demand. Event attendees will receive dinner, goodie bags, t-shirts, as well as other prizes as part of a raffle with prizes from local businesses. Anyone interested in participating, but not golfing, can attend the post-tournament dinner.  
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 To learn more about the Liam Schulze 11th Annual Memorial Golf Tournament, HLH and other histiocytic disorders as well as Liam’s Lighthouse Foundation, please visit www.LiamsLighthouseFoundation.org.  

 About Liam’s Lighthouse Foundation 
Liam’s Lighthouse Foundation (LLF) is a non-profit founded in 2009 to support a grieving mother who lost her 20-month-old son to Hemophagocytic Lymphohistiocytosis (HLH). The foundation is focused on raising funds to support critical research for HLH and other Histiocytic Disorders, supporting families on their Histio journeys, and educating healthcare professionals, hospitals, and the community about the disease and treatment options.   
 
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Media Contact 
Mary Sullivan  
Liam’s Lighthouse Foundation 
Mary@liamslighthousefoundation.org 
401.339.2658