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Mary Sullivan | Mary@LiamsLighthouseFoundation.org | 401.339.2658
5K to Fight Histio Puts Spotlight on Rare Diseases
7th annual event hosted by Liam’s Lighthouse Foundation to raise awareness and money for histiocytic research.
WHAT: 5K to Fight Histio
WHO: Liam’s Lighthouse Foundation
WHERE: Hudson River Park – Pier 84
555 12th Ave
New York, NY 10036
WHEN: Sunday, July 21, 2019 from 8:00 a.m. - 12:00 p.m. ET
On July 21, 2019, the annual 5K to Fight Histio will bring together families and leaders in the histiocytosis community to raise awareness about and money to support Hemophagocytic Lymphohistiocytosis (HLH) and histiocytic disorders. Now in its 7th year hosted by Liam’s Lighthouse Foundation, the 5K run/walk will take place at New York City’s Hudson River Park with proceeds funding cutting-edge medical research.
“Seven years ago, the 5K started out as a group of friends trying to support a grieving mother who lost her 20-month-old to HLH. In that short time, we’ve not only raised thousands of dollars to support critical research, but more importantly we’ve created a supportive community for those impacted by HLH and other histio disorders,” said Michelle Schulze, president and founder of Liam’s Lighthouse Foundation. “We’re excited to host hundreds of histio families from all over the world – including South Africa – at this year’s event, where we’ll come together to celebrate life and the progress we’ve made in taking on these rare disorders.”
Histiocytic disorders are a group of life-threatening diseases that often go misdiagnosed or underdiagnosed as initial symptoms may mimic other problems such as common infections. Symptoms may include persistent fevers, rashes, enlarged spleen, liver and/or lymph nodes, etc. A swift diagnosis is key to improving outcomes, as are expanding treatment options for these patients.
To learn more about HLH and other histiocytic disorders as well as Liam’s Lighthouse Foundation, please visit www.LiamsLighthouseFoundation.org.
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light - house, (n): a tower with a powerful light positioned at some important point to serve as a guide.
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