We are excited to announce this years 5K to Fight Histio. I am so thankful for how far this has all come and how many people help keep Liam's spirit alive. I hope you will consider joining Team Liam and all the other families in NYC this summer! Save the Date 07.20.14 !
You can find out more by visiting our Fundraising site HERE
Liam’s Lighthouse Foundation is ecstatic to announce the funding of its first research grant to Cincinnati Children’s Hospital Medical Center in the amount of $100,000 over the next two to three years for the research of gene therapies for Hemophagocytic Lymphohistiocytosis (HLH).
LLF traveled to CCHMC to present this grant and meet with the researchers on 8/2/12!
Here is an article from a newspaper:
Thanks to the Ryan Family, all the bowlers, supporters and organizers who helped make this year's Bowl 4 Histio event a great success! $9036 was raised for Liam's Lighthouse Foundation and histiocytosis research! Way to go Team Taylor!
Also, thank you so much to Rochelle Griger Wilkinson and Amy Griger for traveling and helping out with this event. Together, we will make a difference in the world of Histiocytic Disorders!Dr.Lisa Filipovich Participates in Grand Rounds and Lecture at The Children's Hospital, Aurora, CO
Charity event honors East Islip girl with rare disease
On April 1, 2011, liam's lighthouse foundation in conjunction with The Children's Hospital, Aurora, CO and The University of Colorado Medical School, sponsored Dr. Lisa Filipovich, expert in the field of HLH, to visit and provide grand rounds and lecture to pediatric fellows, residents, and attending physicians. Some histio parents and grandparents were also able to join us for a very informative day. LLF is very much focused on awareness and we were delighted about the success of the event. Thank you to Dr. Jenny Soep for helping to make this opportunity possible.
The Liam Schulze 2nd annual memorial golf tourney...here's what you missed and what we accomplished!!
BIKE NY 5-BORO TRIP MAY 2, 2010
(By Rick Staron)
"Bike New York 2010 completed. We raised $815 for Liam's Lighthouse Foundation and had an excellent, if exhausting day. Thanks so much to everyone who contributed."
"First, the ride itself: 42 miles, through all five New York Boroughs.
After last year's rainy, wet & cold experience, this year's version could not have been more different. Natalie observed that a clock/thermometer near the VN bridge, which read 54-dgrees last year, in wind and a driving rain, indicated a temperature of 89 degrees this year."
"Given the choice, I'll take the sunshine. On a personal level, I managed to pedal up all the bridges on the tour this year, including that beast (the Verazaano bridge) at the end. Which isn't to say I never got off my bike. I did. Just not on the bridges."
"Spent at the end oft he day. And my knees hurt like crazy (I thought biking was low impact and shouldn't hurt the knees...maybe I DO need a new bike). But quite satisfied with the experience."
" And the fundraising: Last year, we raised money for Ronald McDonald House in Danville, where we spent a few days when Roger was born."
"This year,it was another easy decision to benefit Liam's Lighthouse Foundation, having followed Liam's fight against HLH very closely."
"Raising money for this foundation accounts for the lighthouses on our helmets, which were actually the result of me tapping into a crafty side I had no idea even existed. They turned out to be a big hit throughout the ride. Literally dozens of people asked us about the significance of the lighhthouses, giving us the opportunity to tell them about HLH, Liam, and the foundation (always careful to mention the website, www.liamslighousefoundation.org.)"
"As we told one family, the mom reached into her bike pouch, pulled out a $5 bill and said "Here. Add this to the cause." We did. Thank you Nina, whereever you are."
"As I said earlier, thanks so much to everybody who donated. This is a new foundation, still establishing itself, so everything makes a difference. And it is in memory of a truly incredible little boy. Liam was, indeed, a powerful warrior. I'm honored to have had the opportunity to extend that power a little."
SINCERE THANKS TO RICK, NATALIE, AND THE STARON FAMILY FOR BIKING FOR A CURE FOR HLH! YOU ARE MAKING A DIFFERENCE!
Well, from what I have heard and seen from the pictures below, the Kueka Lake Wine Trip fundraiser was a success! April Zambetti did a phenomenal job organizing the event and representing liam's lighthouse foundation. Thank you so much for all of your hard work, April! I am sure Liam is so proud of his soldiers! And thank you to everyone who went and supported Liam's foundation! Here are a few pics from the day:
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