HUNDREDS GATHER FROM United States AND AROUND THE WORLD AT NYC'S HUDSON RIVER PARK FOR 5K TO FIGHT HISTIO
HUNDREDS GATHER FROM UniteD States and Around the World AT NYC's HUDSON RIVER PARK FOR 5K TO FIGHT HISTIO
New York, NY July 18, 2014 – Liam’s Lighthouse Foundation 5K to Fight Histio takes over Hudson River Park.
Sunday, July 20, 2014, 11AM - Hundreds are gathering from all over the United States, Canada and beyond to join Liam's Lighthouse Foundation at Hudson River Park, NYC. Get ready to be inspired, moved, and motivated when you run/walk in step with others affected by Histiocytosis (Histio) on Sunday, July 20, 2014 in Hudson River Park, NYC. A virtual walk will take place in St.Louis, MO at 10AM. From the very start to the emotional crossing of the finish line, you will be amazed at the strength, power, and determination of our survivors, friends and family and Histio community. Together, we run/walk to raise funds for ground breaking research, to increase awareness of a disease that all too often goes misdiagnosed, and to provide support to each other as we fight Histio. What started out 5 years ago as 3 friends trying to support a grieving mother who lost her 20 month old son to HLH, and gathering with posters outside the Today Show, has grown larger and faster than any of us could have imagined. Every step taken and every dollar raised brings us closer to the ultimate finish line...A CURE!
Hemophagocytic Lymphohistiocytosis or HLH – has taken the life of little Liam and many others, but Michelle Schulze (Liam’s mommy) and the Histio family march on to fight for a cure. Patients and families often endure the same struggles as cancer patients due to rigorous therapies in attempt to suppress the disease. Currently, there is no cure. HLH and Langerhan’s Cell Histiocytosis (LCH) are the most common forms of Histiocytosis. Treatments for Histiocytosis can include high-dose steroids, chemotherapy and bone marrow transplants.
Those wishing to participate or help can do so by visiting the registration table at Pier 46 starting at 10 AM the day of the event. Registration is $40. Help us reach our goal of 100,000! Donations are tax deductible. Students from the Stuyvesant High School RC Club will be on hand to help manage the 300+ registrants.
The Icla Da Silva Foundation will provide information on the importance of becoming a bone marrow donor. Being a bone marrow donor is simple and easy. There is no fee or ‘big scary needles’! Come out to learn more and you could save a life! Sign up to be a donor at the event by simply swabbing your cheek.
On Monday, the many families will gather outside the Today Show to help bring awareness about the cause.
To learn more visit: www.LiamsLighthouseFoundation.org
Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.
light - house, (n): a tower with a powerful light positioned at some important point to serve as a guide.
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