Welcome to liam's lighthouse foundation! My name is Michelle Schulze and I am the proud mother of baby angel Liam Schulze. I am originally from Northeast Pennsylvania and graduated with a Master's Degree in physical therapy from Misericordia University. I started liam's lighthouse foundation because my son has inspired me to make a difference in the world of Histiocytosis and continue the fight he no longer could against this horrific disease. The harsh reality is that most physicians are not familiar with HLH (Hemophagocytic Lymphohistiocytosis), many of which have never even heard of the disease. HLH is going undiagnosed or misdiagnosed, and many children have died before a diagnosis could be made due to its rapid, fatal nature. Educating the community and our primary care medical professionals is mandatory so this disease can be identified earlier and a cure can be found. Parents are their children's best advocates and are part of the team to provide our children the best possible chance for early detection and survival.
light - house, (n):
a tower with a powerful light positioned at some important point to serve as a guide.
Dedicated to advancing research, awareness, and support for Hemophagocytic Lymphohistiocytosis (HLH) and Histiocytic Disorders
liam's lighthouse foundation, a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.