We are excited to announce this years 5K to Fight Histio. I am so thankful for how far this has all come and how many people help keep Liam's spirit alive. I hope you will consider joining Team Liam and all the other families in NYC this summer! Save the Date 07.20.14 !
You can find out more by visiting our Fundraising site HERE
Liam’s Lighthouse Foundation is ecstatic to announce the funding of its first research grant to Cincinnati Children’s Hospital Medical Center in the amount of $100,000 over the next two to three years for the research of gene therapies for Hemophagocytic Lymphohistiocytosis (HLH).
LLF traveled to CCHMC to present this grant and meet with the researchers on 8/2/12!
Here is an article from a newspaper:
Thanks to the Ryan Family, all the bowlers, supporters and organizers who helped make this year's Bowl 4 Histio event a great success! $9036 was raised for Liam's Lighthouse Foundation and histiocytosis research! Way to go Team Taylor!
Also, thank you so much to Rochelle Griger Wilkinson and Amy Griger for traveling and helping out with this event. Together, we will make a difference in the world of Histiocytic Disorders!Dr.Lisa Filipovich Participates in Grand Rounds and Lecture at The Children's Hospital, Aurora, CO
Charity event honors East Islip girl with rare disease
On April 1, 2011, liam's lighthouse foundation in conjunction with The Children's Hospital, Aurora, CO and The University of Colorado Medical School, sponsored Dr. Lisa Filipovich, expert in the field of HLH, to visit and provide grand rounds and lecture to pediatric fellows, residents, and attending physicians. Some histio parents and grandparents were also able to join us for a very informative day. LLF is very much focused on awareness and we were delighted about the success of the event. Thank you to Dr. Jenny Soep for helping to make this opportunity possible.
The Liam Schulze 2nd annual memorial golf tourney...here's what you missed and what we accomplished!!
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