We are pleased to announce the release of our new website, designed with a fresh new look and user-friendly navigation, updated with the latest information about our research initiatives and fundraising efforts!
As we move forward towards our goals, we are beyond thrilled and so proud of our one of a kind awareness event that has been organized in NYC, our fundraising efforts, and the research we are funding! What started out 5 years ago as 3 friends trying to support a grieving mother who lost her 20 month old son to HLH, has grown larger and faster than any of us could have imagined. So please make sure you REGISTER your email with us to stay up to date on the latest news, research, and fundraisers!
I would like to welcome our newest board member, Amanda Majusiak, web developer and social media outreach coordinator. Amanda is the wife of adult HLH survivor, Eric Majusiak, and has made our new website possible. We are thrilled to have this very talented, passionate, and dedicated new board member and we are so excited to have her as part of the team!
Thank you to our fellow histio families, friends, and supporters for your continued support. Most of all, thank you to LLF's dedicated board members who continue Liam's fight as much as they are able and have never left my side. I am truly blessed to have you all in my life. Liam's light continues to shine because of each and every one of you and in return, other lives are being saved!
Here is to innovation, implementation & creating memories that will last a lifetime with Liam's Lighthouse Foundation!
With much gratitude,
We are excited to announce this years 5K to Fight Histio. I am so thankful for how far this has all come and how many people help keep Liam's spirit alive. I hope you will consider joining Team Liam and all the other families in NYC this summer! Save the Date 07.20.14 !
You can find out more by visiting our Fundraising site HERE
Liam’s Lighthouse Foundation is ecstatic to announce the funding of its first research grant to Cincinnati Children’s Hospital Medical Center in the amount of $100,000 over the next two to three years for the research of gene therapies for Hemophagocytic Lymphohistiocytosis (HLH).
LLF traveled to CCHMC to present this grant and meet with the researchers on 8/2/12!
Here is an article from a newspaper:
Thanks to the Ryan Family, all the bowlers, supporters and organizers who helped make this year's Bowl 4 Histio event a great success! $9036 was raised for Liam's Lighthouse Foundation and histiocytosis research! Way to go Team Taylor!
Also, thank you so much to Rochelle Griger Wilkinson and Amy Griger for traveling and helping out with this event. Together, we will make a difference in the world of Histiocytic Disorders!Dr.Lisa Filipovich Participates in Grand Rounds and Lecture at The Children's Hospital, Aurora, CO
Charity event honors East Islip girl with rare disease
The 3rd annual Liam Schulze memorial golf tournament was held at Sand Springs Country Club in Drums, PA on June 5, 2011. Once again it was a huge success, raising close to $9500.00 toward the research of Histiocytosis! Thank you to all who participated and helped to make this event possible including our sponsors, golfers, and volunteer staff, especially Chris Slezak for organizing the event! A pre-golf tournament "Happy Hour" was held the night before by Barbara and Sal Sciandra to help raise money for the foundation. Thank you Barb and Sal for organizaing this event!
"Bowling 4 Histio" in honor of LCH warrior, Taylor Ryan, took place on July 2, 2011 in East Islip, NY. This fundraiser was held by the Ryan family and raised close to $11,000.00 for LLF! Thank you, Ryan Family, from the bottom of our hearts!
"Pinning Down a Cure" bowling fundraiser and silent auction in honor and memory of HLH angel, Abigail Buckner, took place Saturday, August 6, 2011 in Shakopee, MN. LLF is extremely excited and thankful to have been the beneficiary of this event! Thank you Buckner Family!!
Thank you to LLF supporter, Becky Honeycutt, for competing in a "5K for Liam" on April 3, 2011 and raising money for LLF!
On April 1, 2011, liam's lighthouse foundation in conjunction with The Children's Hospital, Aurora, CO and The University of Colorado Medical School, sponsored Dr. Lisa Filipovich, expert in the field of HLH, to visit and provide grand rounds and lecture to pediatric fellows, residents, and attending physicians. Some histio parents and grandparents were also able to join us for a very informative day. LLF is very much focused on awareness and we were delighted about the success of the event. Thank you to Dr. Jenny Soep for helping to make this opportunity possible.
The Liam Schulze 2nd annual memorial golf tourney...here's what you missed and what we accomplished!!
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