In this quarter, LLF became eligible and received a donation of Office365 for Nonprofits from Microsoft. This is a no cost upgrade for LLF to better serve histio families, private donors, corporate sponsors and our Medical & Research Advisers. Since the LLF Board is spread across the United States, it will allow LLF Board members to communicate documents internally, host live webinars with physicians and plan for events and the future of Liam's Lighthouse Foundation.
Alacrita, an independent research company, are looking for people who care for children with HLH, and young adults (18-30 years inclusive) who have recovered from HLH, to take part in a short study to understand how HLH affects children and the people who look after them. We are contacting you as a subscriber of Liam’s Lighthouse Foundation.
If you contact Alacrita to let them know you are interested in taking part in this study, they will first arrange to speak to you by telephone you to ask a few questions to determine whether you are eligible. This is a standard step for all studies, as researchers want to recruit people with particular characteristics.
If you are eligible, the Alacrita research team will arrange a convenient time for you to take part in an interview with a trained interviewer. This can be by telephone or in-person, either at your home or at a mutually convenient place.
If you then agree to take part in the study, Alacrita will send you a letter confirming the date, time, and place of your interview by post or email, together with more detailed information about the study and a Background Questionnaire for you to complete before the interview.
During the interview you will be asked questions about your child with HLH and your experiences of caring for them. The interview will take about an hour. You will receive a [$100/£75] voucher to cover any costs you incurred by taking part in the interview.
You are free to withdraw from the study at any point, and you do not have to give a reason. We do hope that you will take part, as your participation will contribute to vital understanding about patients and their parents/primary carers living with HLH.
If you are interested in taking part, please contact the study research team by filling out the form below to send an email to the study team at: HLH@alacritaconsulting.com
Dr Annabel Nixon
Help us Fund a Cure
|liam's lighthouse foundation|
We raised $96,000 so far from our 5K to Fight Histio in NY on July 20th. Please consider making a small donation to help us donate $100,000 to Histiocytosis Research by clicking the link below.
Terms and Conditions of purchases:
- One donation per customer.
- Limited time offer. You must complete a purchase at smile.amazon.com including one or more items eligible for an AmazonSmile donation between 12:00 a.m. (PT) June 9, 2014 and 11:59 p.m. (PT) June 15, 2014. In addition, this promotion will expire after aggregate donations have reached $1 million.
- The $5 donation will be made through the AmazonSmile program at smile.amazon.com under the same terms and at the same time as other donations made through the program, and will be in addition to the 0.5% donation made on the purchase price of your eligible item(s).
- Offer valid for customers located and with billing addresses in the United States.
- Offer may not be combined with other offers.
- Amazon reserves the right to modify or cancel the offer at any time.
- Offer is non-transferable and may not be resold.
- If any of the products related to this promotion are returned, the donation will not be made.
- If you violate any of the Terms and Conditions, the promotion will be invalid.
- Void where prohibited.
How does my organization receive the donations?
Each quarter, the AmazonSmile Foundation makes donations to eligible charitable organizations by electronic funds transfer. Donations will be transferred approximately 45 days after the end of each calendar quarter. To account for Product returns, a portion of the quarterly donations will be withheld until the next donation cycle, subject to any reduction due to returns from prior quarters. See the AmazonSmile Participation Agreement for more details.
How does AmazonSmile work?
When first visiting AmazonSmile, customers are prompted to select a charitable organization from almost one million eligible organizations. In order to browse or shop at AmazonSmile, customers must first select a charitable organization. For eligible purchases at AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the purchase price to the customer’s selected charitable organization.
What is the AmazonSmile Foundation?
The AmazonSmile Foundation is a 501(c)(3) private foundation created by Amazon to administer the AmazonSmile program. All donation amounts generated by the AmazonSmile program are remitted to the AmazonSmile Foundation. In turn, the AmazonSmile Foundation donates those amounts to the charitable organizations selected by our customers. Amazon pays all expenses of the AmazonSmile Foundation; they are not deducted from the donation amounts generated by purchases on AmazonSmile.
Please see below & REGISTER HERE .
Bone Marrow Donor
Bone Marrow Drive
Bowling 4 Histio
Dr. Lisa Filopovich
Liam Schulze Memorial Golf Tournament
Liam's Cupcakes 4 A Cure
Liam's Lighthouse Foundation
Pinning Down A Cure
Prayers For Izzy
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