event history
Dr.Lisa Filipovich Participates in Grand Rounds and Lecture at The Children's Hospital, Aurora, CO
On April 1, 2011, liam's lighthouse foundation in conjunction with The Children's Hospital, Aurora, CO and The University of Colorado Medical School, sponsored Dr. Lisa Filipovich, expert in the field of HLH, to visit and provide grand rounds and lecture to pediatric fellows, residents, and attending physicians. Some histio parents and grandparents were also able to join us for a very informative day. LLF is very much focused on awareness and we were delighted about the success of the event. Thank you to Dr. Jenny Soep for helping to make this opportunity possible.
Summer Fundraisers
The 3rd annual Liam Schulze memorial golf tournament was held at Sand Springs Country Club in Drums, PA on June 5, 2011. Once again it was a huge success, raising close to $9500.00 toward the research of Histiocytosis! Thank you to all who participated and helped to make this event possible including our sponsors, golfers, and volunteer staff, especially Chris Slezak for organizing the event! A pre-golf tournament "Happy Hour" was held the night before by Barbara and Sal Sciandra to help raise money for the foundation. Thank you Barb and Sal for organizaing this event!
"Bowling 4 Histio" in honor of LCH warrior, Taylor Ryan, took place on July 2, 2011 in East Islip, NY. This fundraiser was held by the Ryan family and raised close to $11,000.00 for LLF! Thank you, Ryan Family, from the bottom of our hearts!
"Pinning Down a Cure" bowling fundraiser and silent auction in honor and memory of HLH angel, Abigail Buckner, took place Saturday, August 6, 2011 in Shakopee, MN. LLF is extremely excited and thankful to have been the beneficiary of this event! Thank you Buckner Family!!
Thank you to LLF supporter, Becky Honeycutt, for competing in a "5K for Liam" on April 3, 2011 and raising money for LLF!
9/28/10
The Liam Schulze 2nd annual memorial golf tourney...here's what you missed and what we accomplished!!
Click Here!
9/28/10
POWER MORPHICON UPDATE: $3082.00 donated to LLF!!!
Thank You!!!!!
8/1/10
liam's lighthouse foundation chosen as the official charity for the silent auction at this year's POWER MORPHICON EVENT in Pasadena, CA from 8/27/10 - 8/29/10!
Power Morphicon celebrates the hit TV show, POWER RANGERS with industry guests, live events, and more! Join them as they convene for the show's 17th anniversary of its premiere!
Visit www.officialpowermorphicon.com to see liam's lighthouse foundation represented as their official charity!
6/27/10
Kid Wonder: Archbald girl spearheads projects to increase awareness of rare blood disorder
http://thetimes-tribune.com/arts-living/kid-wonder-archbald-girl-spearheads-projects-to-increase-awareness-of-rare-blood-disorder-1.859672
6.22.10
KIDE HOPE CHEST BLANKET FUNDRAISER FOR LLF
KIDS HOPE CHEST, a web-based store started by Lisa Martin, mommy to HLH warrior Brayton Martin CB: braytonmartin), to brighten a child's hosptial experience. KIDS HOPE CHEST would like to donate all the proceeds from blankets sold in the month of JULY to LLF!
Brighten your child’s room or hospital room with these fun colorful, personalized & monogrammed homemade blankets. Customizable blankets made with Soft cotton flannel makes these washable blankets cuddly, warm and easy to care for. Approximately 36" x 36". Lots of fun prints to choose from.
Please visit http://www.kidshopechest.com/baby-toddler-blankets.aspx. They are only $14.99 and would make WONDERFUL GIFTS!!
THANK YOU KIDS HOPE CHEST!!
6.10.10
Baby Sophia's Lifesaver still not found,
Bronx baby will die from HLH without your help!
Bone marrow transplants when race is an issue
http://www.time.com/time/health/article/0,8599,1993074,00.html
Jennifer Lopez visits baby Sophia!
Please become a bone marrow donor today!!
www.marrow.org
or
www.dkmsamericas.org
5/1/10
5/12/10
BIKE NY 5-BORO TRIP MAY 2, 2010
(By Rick Staron)
"Bike New York 2010 completed. We raised $815 for Liam's Lighthouse Foundation and had an excellent, if exhausting day. Thanks so much to everyone who contributed."
"First, the ride itself: 42 miles, through all five New York Boroughs.
After last year's rainy, wet & cold experience, this year's version could not have been more different. Natalie observed that a clock/thermometer near the VN bridge, which read 54-dgrees last year, in wind and a driving rain, indicated a temperature of 89 degrees this year."
"Given the choice, I'll take the sunshine. On a personal level, I managed to pedal up all the bridges on the tour this year, including that beast (the Verazaano bridge) at the end. Which isn't to say I never got off my bike. I did. Just not on the bridges."
"Spent at the end oft he day. And my knees hurt like crazy (I thought biking was low impact and shouldn't hurt the knees...maybe I DO need a new bike). But quite satisfied with the experience."
" And the fundraising: Last year, we raised money for Ronald McDonald House in Danville, where we spent a few days when Roger was born."
"This year,it was another easy decision to benefit Liam's Lighthouse Foundation, having followed Liam's fight against HLH very closely."
"Raising money for this foundation accounts for the lighthouses on our helmets, which were actually the result of me tapping into a crafty side I had no idea even existed. They turned out to be a big hit throughout the ride. Literally dozens of people asked us about the significance of the lighhthouses, giving us the opportunity to tell them about HLH, Liam, and the foundation (always careful to mention the website, www.liamslighousefoundatio
"As we told one family, the mom reached into her bike pouch, pulled out a $5 bill and said "Here. Add this to the cause." We did. Thank you Nina, whereever you are."
"As I said earlier, thanks so much to everybody who donated. This is a new foundation, still establishing itself, so everything makes a difference. And it is in memory of a truly incredible little boy. Liam was, indeed, a powerful warrior. I'm honored to have had the opportunity to extend that power a little."
SINCERE THANKS TO RICK, NATALIE, AND THE STARON FAMILY FOR BIKING FOR A CURE FOR HLH! YOU ARE MAKING A DIFFERENCE!
4/26/10
Dear Mrs. Schulze,
I am Anastasia's daughter Megan. I am 8 years old. I prayed for Liam and I followed his story with my mom. I would like to help by doing something good for other sick children. I have been growing my hair for Locks of Love and I would like to donate my hair in memory of Liam on May 15. I also want to help you by asking my family and friends for donations to help Liam's Lighthouse Foundation. Please see the attached flyer I am going to use.
Share some love,
Spare some change.
I am about to shear
My hair in Liam’s name.
Be aware, Oh Please be aware
HLH is still out there!
I am donating 10 inches of my hair to Locks of Love in memory of Liam Schulze. My hair will be made into a hairpiece for children who have a disease that results in hair loss.
Liam Schulze is a little boy that had HLH and did not get to turn two. HLH (Hemophagocytic Lymphohistiocytosis) is a blood disease that is fatal if untreated. Many children are under diagnosed or misdiagnosed. Many doctors are not familiar with HLH so I want to help increase awareness for this disease.
Please support me by donating to HLH awareness. All donations I receive will go to Liam’s Lighthouse Foundation. Thank you!!!!
Love,
Megan Zabielski
5/19/10 UPDATE FOR MEGAN:
Megan looks absolutely beautiful! Megan graciously asked her supporters to help support liam's lighthouse foundation by making pledges so she could reach her goal and donate her pledges to the foundation. MEGAN RAISED $462.00!! Thank you so much, Megan, for being such a big girl, being selfless, doing this in memory of Liam and helping someone who needs it. Thank you also for raising money so that we can continue to increase awareness of HLH/Histiocytosis and help fund a cure! I know Liam is so proud of you too! AND THANK YOU TO ALL WHO DONATED TO HELP SUPPORT MEGAN!
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4/23/10
Well, from what I have heard and seen from the pictures below, the Kueka Lake Wine Trip fundraiser was a success! April Zambetti did a phenomenal job organizing the event and representing liam's lighthouse foundation. Thank you so much for all of your hard work, April! I am sure Liam is so proud of his soldiers! And thank you to everyone who went and supported Liam's foundation! Here are a few pics from the day:
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4/15/10
Inaugural cupcake fundraiser for Liam's Cupcakes 4 a Cure was held at Ryan Elementary School in Chandler, AZ. This event was held in memory and honor of angel baby Liam Schulze (Colorado) , angel Caleb Tokarski (Illinois) and survivor Hannah Marsh (Florida). (see "other histio warriors page" for their stories).
THANK YOU TO MEGAN AND LAUREN TOWNE and RYAN ELEMENTARY for hosting "liam's cupcakes 4 a cure"!
Another Histio/HLH warrior earned his angel wings today after fighting so bravely for his life. Caleb Tokarski was only 4 years old and just turned 4 on 4/6/10. Please visit www.caringbridge.org/visit/calebtokarski for his full journey and to support his mom, Amanda, and their family as they suffer their greatest loss.
3/8/10
THE TODAY SHOW:
If you missed the TODAY SHOW on Jan. 28th, here is the link to the clip of liam's lighthouse foundation on the Today Show. When you click on the link below, it should pull the video up ready to go. You need to be patient as it did take a little bit for it to get going on its own, but you don't have to click on anything else. It is the first 40 min of the show and if you fast forward to 19 minutes in, you will see Rochelle holding Liam's photo against the window outside behind Al Roker. Then if you fast forward to 34 minutes in, April is interviewed briefly by Al Roker. At least we got a little air time. The girls did a great job. So for those of you that missed it, you can click on:
http://today.msnbc.msn.com/id/26184891/vp/35123518#35122213
